Disagreement with Dr

So, I rang the doctor about my medication and weight gain.  The receptionist said he would phone me back the following day, which he did, but he woke me up.  This meant that I was completely unable to string a sentence together.  Do other people have that problem with Fibromyalgia?

I can’t think clearly at all sometimes.  Or I can think, but the connection between my brain and my mouth is disrupted and what comes out of my mouth is a slow, slurred, muddled mess.  It doesn’t happen all the time, but if I’m woken from sleep like that there is no point trying to talk to me for at least 20 minutes.

Anyway.  I managed to say that I had put on a stone and a half over 4 months whilst taking the Amiltriptyline.  The Dr said that this wasn’t possible as weight gain wasn’t a side effect of the medication.  I was so befuddled that I couldn’t put together a sentence that made much sense, so trying to reason with him was impossible.

I am going to give him a copy of the leaflet from the packet, with the bit that says it causes weight gain clearly highlighted, along with a letter outlining my concerns about my weight.

He ended up saying that he couldn’t help me, that I should continue to take the meds and to stop trying to run and that I should try swimming instead.  (That’s all fine in theory – but there is no way on earth I am getting half naked in public!)

On another note, I’ve lost another pound in the last few days – so that’s 8lbs lost in a week and a bit since I stopped taking the Amiltriptyline.  Not bad for someone with an underactive thyroid.  🙂

But I haven’t managed to get to work since Tuesday.  Sleep patterns are all over the place and the pain is awul.



Fibromyalgia Hell

I was diagnosed with Fibromyalgia at around Christmas time.  I was put on 30mg of Amitriptyline which helped loads to start with, but caused me to put on a stone and a half in 3 months and has recently stopped working…or at least I thought it had.

I stopped taking the Amitriptyline last week.  I’ve lost 7lbs since.  Not bad.  But…I’m not sleeping properly again and the pain is unreal.

I didn’t go to work today.  I tried…to get out of bed…and failed.  The pain in my limbs is unbearable.  It’s like having full blown flu without the head cold bit.  Every inch of my body hurts.  My family and my lodger don’t believe there is anything wrong with me.  They think it’s all in my head.  But even if it was, I still hurts.  I’m not exaggerating.  It hurts.  All the time.  Everywhere.

Didn’t get out for a run or even a walk last night.  I know that exercise helps the pain in the short term.  But recovery times seem endless.

This is turning into a right moan!

Well – yes – moan, moan, moan, grumble, grumble.  My body hurts so much it makes me cry.

I’m going to try to walk for a while tonight – but it will be a short one.  I’ll talk to the Dr tomorrow.















Day 2 – Oh my word; that hurt!

After the initial high of my first run – day 2.  For whatever reason, I decided to completely rearrange all the furniture in the lounge first.  This was probably as strenuous as a run itself.  But I found myself twitching and wanting to run!   That’s a first.  I don’t know if it was because the furniture was making me feel a bit claustrophobic or what, but I had to get out of the house.

My legs were still burning from the day before.  Every step of my walk/run was painful.  I took the dog with me, but he just wanted to run… and run… and run!  I let him off the lead across the park – he decided that I was too slow and bolted home.   I live next to the park, so it’s not like he was running wild down streets and roads.  He ran home and sat on the door step waiting for me.  Could’t decide if that was a good thing or not, cheeky boy!

When I got in, I could hardly move.  I timed myself this time.  Normally I would walk that route slowly with the dog.  It would take about an hour, give or take.  This time it took 26 minutes.  I’ll use this as a baseline.

I don’t understand how people manage to run for more than a couple of minutes at a time.  It hurts.  It really hurts.  It hurts my thighs – (walking up the 2 flights of stairs at work today nearly killed me).  It hurts my shins.  It hurts my chest.  I feel like I’m going to puke.  It hurts my side when I get a stitch.    Why do people do this?  Tell me its going to get easier – please!?!